I know it's been awhile. Sorry things have been pretty hectic around here lately. With me being in college classes I hardly have time to breathe. However, I'm making due. The kids are doing ok. We'll talk more about that in a minute. The school season is off to a great start. The kids are doing well. We finally got Dylynn tested and he doesnt have significant enough delays so they wont let him start school early. It's a good thing and a bad. Hopefully, he doesnt forget all he knows before he starts Pre-k in 2 years. We'll see.
Arek is doing awesome in Kindergarden. He doesnt like being told what to do but otherwise he's doing ok. He loves school and is so proud of the homework that he gets to bring home. I just wish he'd have a better attitude about his brothers. Ugh!
That brings us to Christian. God love him! He's such a sweet kid and so loving. However, when we have issues with him we really have issues. I'm not sure what is going on with him, if his meds need to be changed again or if its the weather or something but for 2 weeks now it's like nothing is clicking inside his head. My husband and I can tell him things literally 10 times and it just does not click and he keeps doing what he's not supposed to. Case in point he decided to eat about 10 leaves off our Lime tree even though I said not to. I repeatedly told him not to and he didnt stop until I grabbed his arm and pulled him over to me. This is not normal for him. It's been 2 weeks of this. He's not sleeping well again either. Which means mommy doesnt get much sleep either. It's hard to explain. I literally get very little sleep because I have to be alert enough to hear if he's getting into something. If I'm not then theres no telling what the kid will do. I have to make sure he's ok. I love my husband but well he's not the greatest at paying attention to the kids. Ok thats an understatement if the kids flooded the house around him he'd just think it was ok. Therefore, I feel the need to have to be alert and make sure nothing happens to the kids. Which means I'm tired. I am so tired right now. I cant even describe how tired I am.
I pride myself on not trying to let things get to me too much when it comes to the boys because if I let it get to me it's going to wear me down. Well my friends I'm getting worn down. We were doing so good with Christian. I dont know what happened. It's like it was the calm before the storm.
With any luck we'll get some answers and get him squared away so that I can once again get some sleep.
Think happy thoughts...
Wednesday, October 7, 2009
Friday, August 7, 2009
Mama is frustrated...
I've learned that since we got Chrisser's diagnosis that really you have to be patient and flexable when dealing with side effects of autism and what it brings. However, there is a time when you feel like enough is enough. I'm there right now with Dylynn. We're still going through medicine changes with him. It's ongoing and getting better somewhat. However, his moods are getting worse and I dont know why. He throws horrendous fits and starts trying to hurt me or my husband. Sometimes he just starts picking up whatever is available and chucking it as far as he can. He did that this morning and screamed his little head off. He chucked pretty much everything that wasnt grounded to the floor across my room while screaming. I've learned not to touch him when he's doing this. It only makes it worse. So I waited till he was done and now he's laying in bed next to me as if nothing ever happened. You would think I would be used to this with going through something similar with Chrisser. No... I'm not... infact it breaks my heart seeing it. I dont know how to help him. It sucks being a parent and knowing theres nothing you can do to help him. I pray that we get to the root of these outbursts because they're wearing on my majorly. I just want all my babies to be ok. *sigh*
Thursday, July 30, 2009
Mommy's have oops moments too...
This week has been crazy with Chris in camp. Dylynn and Arek are driving me beserk because they're jealous and hubs has been working crazy hours. It's been rather stressful too with the issues with Dylynn so normally my husband and I of course had an oops moment where we took out our stress on each other. Now normally we do this and make up seeing as how neither one of us means anything we say it's just stress relief. However, this time Chrisser was up and he heard what we said. This was my oops moment. He's a smart little guy and no I did not say anything about him. Infact nothing I said was about any of the kids however, he thought I was upset because of him and that daddy was making me leave forever. OOPS! Ok MAJOR OOPS! It never once crossed my mind that he would come to that conclusion over me and my husband bickering over redundant things that really werent important. So, I ended up rocking him and daddy and I reassured him that we were not mad at him and that I wasnt going anywhere. It took about an hour but he finally understood. My husband and I felt like complete idiots. We never had this issue. I feel horrible because poor Chris was so upset. Now we know not to stress relief infront of him. *sigh* It's amazing what you learn being a parent, not just of special needs kids either regular kids can teach you so incredibly much.
In other news we're still having issues with Dylynn. It's scary to say but he's acting just like Chris was when he was this age. In a way I'm happy because I can see signs from Chris and know somewhat whats going on but in another way it scares the crap out of me.
Theres a saying I read somewhere along the way learning about Autism. "No two people have the same Autism" - Unknown. It is so true. I mean look theres people that have the same type of cancer, same type of diabetes, even the same type of flu. However, with Autism no two people will ever have it the same way ever. Thats something that boggles my mind. Look at all the millions of people out there... not one of them is the same as another. In dealing with Chris and Dylynn this comes to be pretty complicated at times because they may have some of the same traits but they both have to be dealt with in different ways. I get caught up sometimes thinking they are the same. Yes even I have more oops moments. It's a learning process. It's a crazy learning process but it's a learning process none the less.
In other news we're still having issues with Dylynn. It's scary to say but he's acting just like Chris was when he was this age. In a way I'm happy because I can see signs from Chris and know somewhat whats going on but in another way it scares the crap out of me.
Theres a saying I read somewhere along the way learning about Autism. "No two people have the same Autism" - Unknown. It is so true. I mean look theres people that have the same type of cancer, same type of diabetes, even the same type of flu. However, with Autism no two people will ever have it the same way ever. Thats something that boggles my mind. Look at all the millions of people out there... not one of them is the same as another. In dealing with Chris and Dylynn this comes to be pretty complicated at times because they may have some of the same traits but they both have to be dealt with in different ways. I get caught up sometimes thinking they are the same. Yes even I have more oops moments. It's a learning process. It's a crazy learning process but it's a learning process none the less.
Thursday, July 23, 2009
Yet another hurdle...
It's getting to the point now where hurdles just happen and they dont even effect me anymore. Sad but true. This hurdle happens to be with Dylynn this time. He has started throwing major temper tantrums and trying to hurt me and my husband. Now for a 3 year old child this is kinda odd behavior. Not that he can hurt us very much but when he head butts thats a whole other story. So, we dealt with it for a week and waited to see if it was the weather or he had a cold. Nope nothing changed he kept having tantrums out of no where for no apparent reason. So, I called the behaviorist and said basically said ok what the heck is going on here. She thinks that it's either A his new medicine. Or B he's coming down with something. So, we took him off the new medicine and that was on Tuesday. So far he hasnt gotten sick and the tantrums continue. Not sure what the deal is but it's getting rather annoying. I mean I know these things happen but good grief they wear me out. I guess I'm to the point where I'm like a zombie in dealing with these issues. That sounds weird but it's like second nature to do so. The only issue I have is that it wears me out mentally and physically. I can only imagine what it's doing for me son. Poor kiddo... Heres hoping the tantums stop.
Tuesday, July 21, 2009
News and Quirks...
It's been awhile since I've blogged due mostly to things being hectic as all hell around here with all 3 kids being home for summer without summer school. Also, changing medicines with both Chris and Dylynn has been trial and error and overwelming at time. Infact I've been run down because of it and tired as all get out. However, we are somewhat making progress. (More on that in a few)
Chris is attending a camp right now for kids with Autism and ADD or ADHD. Today was day 2 and he's doing really well. There is 100 campers and each child had a "buddy" that is a soldier that has been through a sort of boot camp to train to be able to deal with the kids. They have learned all about their child and even got to pick who they wanted to be teamed up with. Chris is teamed up with Amber. Who, I'm told, he told her as soon as soon as he met her that she was beautiful. I swear the kid is a heartbreaker and not afraid to tell how he feels. He definantly wears his heart on his sleeve thats for sure. Today Chris met another little boy at camp that is Autistic just like him. They completely hit it off and the mother gave my mom her phone number(my mom picked him up because hubs was on funeral detail...army thing) and wants to set up play dates with them. I think it's fantastic to say the least.
The changing things up with the medicine has been pretty overwelming. Once you think oh my god we got things where they need to be another hurdle comes along. Chris is doing good right now and we're keeping where he is right now because he's starting school soon and we dont want him to go haywire in school so we're going to wait to do anymore until after he starts school. Some days are good with Chris some are bad. It's overwelming in the sense that you never ever know what the day will hold and sometimes it's just plain tiring.
Dylynn on the other hand has only been on two medicines. He started a new one and was doing really good on it. Now, however, he keeps trying to hurt me and hubs and we dont exactly know why. So, now we are going to take away the new one and see if it stops and then restart it again in a week. It's so tiring but I know this is just something that comes along with everything.
Otherwise things are coming along. Still waiting on the school system to decide when they're going to test Dylynn so that we can get him in school. Apparently he is not a major priority for them. He is, however, to me so they need to get a freaking move on because I got ape shit on someone's ass.
Chris is attending a camp right now for kids with Autism and ADD or ADHD. Today was day 2 and he's doing really well. There is 100 campers and each child had a "buddy" that is a soldier that has been through a sort of boot camp to train to be able to deal with the kids. They have learned all about their child and even got to pick who they wanted to be teamed up with. Chris is teamed up with Amber. Who, I'm told, he told her as soon as soon as he met her that she was beautiful. I swear the kid is a heartbreaker and not afraid to tell how he feels. He definantly wears his heart on his sleeve thats for sure. Today Chris met another little boy at camp that is Autistic just like him. They completely hit it off and the mother gave my mom her phone number(my mom picked him up because hubs was on funeral detail...army thing) and wants to set up play dates with them. I think it's fantastic to say the least.
The changing things up with the medicine has been pretty overwelming. Once you think oh my god we got things where they need to be another hurdle comes along. Chris is doing good right now and we're keeping where he is right now because he's starting school soon and we dont want him to go haywire in school so we're going to wait to do anymore until after he starts school. Some days are good with Chris some are bad. It's overwelming in the sense that you never ever know what the day will hold and sometimes it's just plain tiring.
Dylynn on the other hand has only been on two medicines. He started a new one and was doing really good on it. Now, however, he keeps trying to hurt me and hubs and we dont exactly know why. So, now we are going to take away the new one and see if it stops and then restart it again in a week. It's so tiring but I know this is just something that comes along with everything.
Otherwise things are coming along. Still waiting on the school system to decide when they're going to test Dylynn so that we can get him in school. Apparently he is not a major priority for them. He is, however, to me so they need to get a freaking move on because I got ape shit on someone's ass.
Wednesday, June 24, 2009
More changes in meds...
So the weaning of the meds is still on going with Chrisser. He seems to be handling it well. It's a very slow going process but it's going ok. He's taken on a weird quirk lately though. He's picking at any scabs on his body constantly. To the point where they bleed. It's annoying for me because no matter what we tell him he wont stop. As it is right now he's in just a pair of undies and walking around with benedryl cream all over him. Poor kiddo. His doctor called in a scribt for antibiotic cream though so that should help. Should being the key word there. Dylynn is doing well on his meds. We have got to get him into school and some OT and PT. He's having alot of issues because he cant explain why he's upset. So he just throws a hilacious fit. Which is sad because he wont let you help him or try to understand. Poor kiddo.
Thursday, June 11, 2009
New meds = New issues to cross....
It's been a week now that Chrisser and Dylynn have started their new medicine(Vyvanse). So far so good with Dylynn. He's still having his little hour long meltdowns but overall he is doing much better. Now Chrisser is a different story. Good lord that child throws a monkey wrench in any situation. It's not necessarily a bad thing but it does have a habit of being aggrivating at times. His doctor is weaning him off of a medicine called Seroquel. It's a slow going process because he was on such a high dose. It was to make him sleep at night. Well, now that we're going down on the dose he's not sleeping and therefore mommy and daddy arent sleeping either and we're tired as all hell. So... we have to go back up on it and come down on the med slower to see if it helps. After a week of no sleep we finally have been able to sleep more than 3 hours at a time. I'm so thankful for that. You have no idea.
Next week we're off to Little Rock again for Chrisser to have an MRI. Should be tons of fun... too bad you cant sense the sarcasim in my typing. His MRI is at 2pm and he's not allowed to eat from midnight on. UGH! He is not going to be a happy child at all. I'll let you know how it goes.
Next week we're off to Little Rock again for Chrisser to have an MRI. Should be tons of fun... too bad you cant sense the sarcasim in my typing. His MRI is at 2pm and he's not allowed to eat from midnight on. UGH! He is not going to be a happy child at all. I'll let you know how it goes.
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